SRP 2018 APPLICATION_LEUKEMIA AND LYMPHOMA SOCIETY_IMPROVING QUALITY OF LIFE.PDF

SALT RIVER PIMA-MARICOPA INDIAN COMMUNITY
10005 E. Osborn Road, Scottsdale, Arizona 85256 / Phone 480-362-7520 /
12% Gaming Contributions Application
Date of Application: July 16, 2018
Organization Name: The Leukemia and Lymphoma Society- Arizona Chapter
Contact Person: Jim Brewer, Executive Director
Email Address: jim.brewer@lls.org
Phone: 602.567.7600
Organization
Mailing Address:
The Leukemia and Lymphoma Society AZ Chapter
3877 N 7th St #300
Phoenix AZ 85014
Project Name: Improving the Quality of Life and Access for Blood Cancer Patients and
Their Families
Grant Award Request: $100,000
Please provide a brief description of the project being submitted to the 12% SRPMIC
Grant program.
The Leukemia & Lymphoma Society’s mission is to cure leukemia, lymphoma, Hodgkin's
disease and myeloma, and improve the quality of life of patients and their families. We have one
goal: a world without blood cancers.
LLS is the leading provider of free information, education and support services to blood cancer
patients and their families, touching patients in local communities through our chapters across
the U.S. and Canada. LLS is dedicated to removing barriers to care. LLS is the voice for blood
cancer patients, working with regulatory bodies (i.e., FDA) and state and federal legislatures to
drive policies that accelerate the development and approval of innovative treatments and ensure
that patients have access to quality, affordable, coordinated care.
LLS has invested more than $1 billion in research to advance therapies and save lives since its
founding. Advised by leading biomedical research and clinical experts, LLS identifies and funds
the most promising blood cancer research found anywhere. Last year alone, LLS invested $49.3
million in blood cancer research, funding 268 cutting-edge projects at prestigious academic
research institutions worldwide. LLS also supported 22 projects through its Therapy
Acceleration Program, a strategic initiative through which we build business alliances and
collaborations with biotechnology companies and academic researchers in order to speed the
development of new therapies and diagnostics. Since 1999, LLS has locally invested nearly
$6.8 million in 17 Arizona based research projects. In addition, in the last fiscal year, LLS
distributed more than $1.2 million in direct financial assistance to Arizona families battling blood

cancers. This includes direct financial aid and our Co-Pay Assistance Program, which helps
patients meet their co-payment obligations related to treatment.
If you could propose one idea to help improve health care delivery in the
United States, what would it be?
“…The most important improvement we can make in health care delivery…is emphasizing
patients’ quality of life during and after treatment…Our nation’s health care system too
often focuses solely on curing the patient and not on also providing the patient comfort,
resulting in preventable suffering during life-saving treatment.” 1
- Christopher W. Hansen, President for the American Cancer Society Cancer Action Network (ACS CAN)
The program detailed in this proposal will aim to do exactly as Mr. Hansen suggests – connect
more blood cancer patients and their families, particularly those from underserved populations in
Arizona with patient services and community resources to address their informational, practical
and supportive needs from the time of their cancer diagnosis, through treatment and, hopefully,
survivorship. LLS will mobilize community-based partners, medical professionals and
representatives from underserved populations toward meaningful action that will result in
increased access to cancer care and support.
LLS is the only volunteer health organization with comprehensive support services for blood
cancer patients in the Arizona area. LLS is also one of the few with services for pediatric blood
cancer patients. Oncologists and practice managers rely heavily on patient advocacy
organizations like LLS to provide reimbursement for treatment-related expenses such as
transportation to assist patients’ access to care,2 and LLS is viewed by healthcare professionals
as a crucial resource that provides education and support to patients.
Goals and Objectives
The program detailed in this proposal will broadly address the health disparities for blood cancer
patients, particularly for vulnerable populations, and ultimately improve the quality of life of
patients and their families. The LLS Arizona Chapter will achieve the following objectives in order
to reach this goal.
a) Engage and connect blood cancer patients and their families with LLS resources and services,
particularly those new to the organization and those newly diagnosed (within 3 months of
diagnosis).
b) Connect blood cancer patients, survivors, family members and caregivers as well as
healthcare providers with Information Specialists in LLS’s Information Resource Center.
c) Deliver personal, peer-to-peer support for newly diagnosed blood cancer patients through the
Patti Kaufmann First Connection Program.
d) Network with Arizona healthcare professionals, hospitals, cancer centers and community-
based organizations to provide LLS resources to blood cancer patients.
e) Plan and execute education programs for patients, caregivers and healthcare professionals
to deliver expert information about blood cancers in the communities we serve.
Below is a graphic illustrating the many ways LLS touches the local community through this
program:

Figure 1. LLS Services for Patients and Families.
Outreach and Engagement Strategy
LLS conducts outreach with local cancer centers, as well as many community-based cancer
centers, community clinics and civic partners to provide education and information to staff and
patients regarding access to LLS services and programs. In the Arizona area, the following
organizations will be included in the outreach network for this project: Improving the Quality of
Life & Access to Care for Blood Cancer Patients and Their Families. The Arizona Chapter
has worked with these organizations in the past, and we will continue to develop relationships
with these stakeholders in addition to expanding our network.
The project’s cycle of work involves an interactive relationship between conducting outreach with
health care providers and cancer patients, providing patient support through one-on-one
assistance as well as group educational programs, and cultivating and engaging lay and
professional leaders who can affect change within vulnerable populations (Figure 2). Through this
work, the LLS AZ Chapter will be able to serve more patients who otherwise might never have
had the opportunity to find support and the chance to become advocates themselves.
Figure 2. Outreach and Engagement Cycle
Impact on the Arizona Area
LLS recognizes that finding cures is not enough; we need to ensure that patients have access to
the treatments they need to live longer, better, healthier lives. Through the work outlined in this
proposal, LLS will meet the informational, practical and supportive needs of blood cancer patients
in Arizona. LLS will connect more patients to services, introducing them to a network of
supporters, and educating them about their disease and treatment options. All of these efforts will
empower these patients to take action to help themselves and help others. We have discovered
that the patients and caregivers who LLS has helped tend to have improved confidence accessing
the healthcare system, which is an important by-product of our interaction with them.

We are living in an exciting time for blood cancer research, but the promise of life-saving new
therapies cannot be realized if not all cancer patients can access available treatments. By offering
support services and arming patients with information and educational opportunities, we will
reduce the disparities in cancer outcomes and improve the quality of life of patients. In addition,
patients who become empowered can further affect change by participating in legislative
advocacy, which can lead to the development and support for more health policies benefiting
blood cancer patients in the United States.
The Leukemia & Lymphoma Society would be honored to receive a grant from Salt River Pima-
Maricopa Indian Community (SRPMIC) to support this important mission program.
REFERENCES
1. Kantar Health (2012). Practice Manager and Oncologist Surveys. Oncology Market Access, US.
2. Pharmaceutical Research and Manufacturers of America (2013). If you could propose one idea to help
improve health care delivery in the United States, what would it be? Retrieved from
http://phrma.org/phrmapedia/conversations/improve-us-health
Beginning Date of Project: November 2018 End Date of Project: October 2019
Geographic Area to be served: The State of Arizona
Please attach budget on how funds will be allocated.
Total Amount for Project: $300,000 Amount of 12% Request: $100,000
(No Multi-Year Request will be accepted)
If the amount of funding received is less than the amount needed for the project, do you
have other funds to complete the project? (Please Explain):
LLS will seek additional funding to underwrite these effort. Sources may be internal (grants
and/or allocations from the society’s home office) or external (support from corporate donors,
pharmaceutical partners, foundations and individual contributors). H
If you receive SRPMIC 12 % funding, will it be spent (Check One):
Monthly
Quarterly
X Lump Sum

List of any SRPMIC 12% funds you have received in the past.
2017 $50,000
2015 $20,000
2014 $50,000
2013 $50,000
2012 $50,000
2011 $100,000
2010 $100,000
2009 $100,000
2008 $100,000
List any other 12 %Tribal Grant funds your organization may be seeking from other Tribal
Governments in 2018-2019.
Tohono O’odham Nation $25,000
Gila River Indian Community $75,000
Ft. McDowell $10,000
List any other funds you have received from the Salt River Pima-Maricopa Indian
Community (Enterprises Included) and identify the amount and the source:
$50,000 2017 Man/Woman of the Year
$30,000 2015 Man/Woman of the Year
$25,000 2013 Man/Woman of the Year
$25,000 2012 Man/Woman of the Year
$25,000 2011 Hope Ball
$25,000 2010 Hope Ball
Funding for project/programs may be based on available funding. As such, if funding
were not available for the full the amount of request how would you prioritize funding.
1. Patient support through one-on-one assistance as well as group educational programs
2. Direct assistance programs
Which municipal governmental entity will serve as your pass through or accept 12% funds
on your behalf?
Maricopa County

By execution of the 12% Gaming Contribution Grant Application the undersigned agrees that
the information contained in the Application is true to the best of the Applicants knowledge.
The Applicant shall notify the SRPMIC if any information in this Application changes.
07/16/2018
Signature for the Applicant Date
Jim Brewer, Executive Director
Name and Title
The Application shall be signed by the senior elected official of the local government, or in the
case of a non-profit entity, the Chief Executive Officer authorizes to commit the non-profit entity
to apply for, accept, and implement an award from the SRPMIC utilizing 12% Gaming
Contributions.