PHOENIX CHILDRENS HOSPITAL FOUNDATION FM 2017.PDF

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March 8, 2017
Selena Castaneda
Secretary, Fort McDowell Yavapai Nation Tribal Council
P.O. Box 17779
Fountain Hills, AZ 85269
Dear Ms. Castaneda,
Phoenix Children’s Hospital extends their appreciation for a future partnership with the Fort McDowell Yavapai
Nation. We are pleased to present our application for a 12% Tribal Gaming Grant request below.
Project Description. The Emily Center at Phoenix Children’s Hospital is a best‐practice model of health education
whose mission is to provide personalized health information along with support and guidance to families. At the
Emily Center nurses and volunteers are engaged in researching, translating and sharing information designed to
assist patients and their parents understand medical condition(s), and make more informed decisions about
treatment and support needs. These nurses work directly with families throughout their health journey. The Emily
Center is a crucial support center for hospital staff; The Emily Center nurses work with individual physicians that
want to provide specific education and informational packets to their families. Hospital families and healthcare
providers from all disciplines, and the general public, rely on The Emily Center for the most up‐to‐date patient
education and resources. The Emily Center is open to the public ten hours per day, Monday through Friday and six
hours per day on Saturday and Sunday. It is the largest pediatric consumer health library in the southwest region
and serves over 56,000 children and families each year; 75% reside in Maricopa County. The Emily Center is staffed
by a senior member of Hospital Administration, six registered nurses and three bilingual support staff (5.85 FTEs), as
well as 14 volunteers. Nurses provide over 145 years of combined pediatric nursing experience and education.
Patrons contact us by telephone, E‐mail, fax, website, and walk‐in. We work in collaboration with the Phoenix Public
Library, which provides online access to our catalog (world‐wide) and offers inter‐library loan services to families
throughout the state of Arizona.
We offer a variety of resources including: books, videos, DVD's, CD's, pamphlets, recent research articles, support
groups, and community information in both English and Spanish. The library is divided into Collections that consist
of resources grouped by topic. In addition to printed materials, our health education program utilizes the "teach‐
back" method, closing the gap of communication between the healthcare team and patient. Teach‐back is a way to
confirm that you have explained to the patient and family what they need to know in a manner that they
understand. Confirmation of understanding is when they can explain it back to you.
Phoenix Children’s Hospital respectfully requests a grant award of $52,000.00 to name the Fort McDowell
Yavapai Nation Diabetes Resource Collection. Additionally, funds will be utilized for dedicated staff time to create
a patient/family information packet that is specific to the needs of Native American patients diagnosed with
diabetes. Our vision for our resource library is to ensure that all families have access to information that is culturally
competent and relevant to their unique needs.
Purpose of the program or project and how it meets Fort McDowell’s funding priorities. Over the past 26 years,
we have produced 897 patient educational handouts (available in Spanish and English) and helped 929,273 patients
and families. Diagnosis‐specific information packets are created and constantly updated with the latest resource
and research information. When a child is diagnosed with a chronic disease or injury, parents need easy access to
relevant resources and guidance in how to navigate through this new chapter in their lives. The primary goal of the
Fort McDowell Yavapai Nation funds is to ensure that the Diabetes Resource Collection is maintained with the most
current resource information for children and families faced with this challenging disease. The Diabetes Resource
Collection currently consists of 93 items – 15 Spanish books; 20 children’s books (two of which were developed by
the Native Diabetes Wellness Program); 51 adult books; six DVDs; and one book in Spanish that we have multiple
copies of so we can send home with Spanish speaking families. Funding will also be allocated to personnel that will

conduct targeted research and collaboration to develop a culturally competent diabetes information packet that is
specific to our Native American patient population. The intent is to include resource information that is tailored to
the unique needs of Native American patients such as accessing services while living in a rural area. We believe this
project aligns directly with Fort McDowell Yavapai Nation’s focus areas of both health and education, impacting the
entire community.
The need that the program or project aims to fulfill, the population targeted, and the estimated number of
people who will be served by the grant. When a child receives a diagnosis that will inevitably affect their well‐being and
lifestyle, families need resource informaƟon that provides reliable and digesƟble informaƟon that can be easily translated
into acƟonable steps they can integrate into their lives. Last year Phoenix Children's Hospital treated 1,944 children
with diabetes. The Emily Center handbook, “How to Care for your Child with Diabetes” was distributed to approximately
100 families each month, totaling over 1,200 disseminated during 2016. Nearly 250 children, their parents and their
siblings will visit and utilize The Fort McDowell Yavapai Nation Diabetes Resource Collection in the Emily Center
every year. Of those utilizing the Collection, an estimated one‐third, or 80 families will be Native American.
Additionally, the Emily Center’s handbook will reach at least 1,200 children and families newly diagnosed with
diabetes each year. Professionals in the community such as teachers and social workers utilize the Collections
regularly to augment their work with families as well. Diligent maintenance and updates to the Fort McDowell
Yavapai NaƟon Diabetes Resource CollecƟon will serve as a lasƟng impact on thousands of paƟents and families and in the
years to come. CreaƟon of a culturally competent informaƟon packet for paƟents, who are members of tribal
communiƟes, will ensure that the families that have the greatest need for resources have access to them.
The partners in the program or project, and other entities providing funding and support (please indicate
whether the organization will be submitting applications to any other tribes). The Emily Center currently partners
with the Phoenix Public Library to provide online access to our catalog and statewide inter‐library loan services to
families. The Emily Center staff and operations are completely funded through philanthropy. At this time the Emily
Center is operating with funds from a fashion show that was held annually to support the Emily Center. The final
fashion show was held in 2016. Those funds will be exhausted before the 2017 calendar year. Phoenix Children's
Hospital Foundation intends to seek funding from foundations and individual donors who have an interest in patient
health education and wellness programs.
Since 2011, Phoenix Children’s Hospital has partnered with the Salt River Pima Maricopa Indian Community, the
Tohono O’odham Nation, the Gila River Indian Community and the Fort McDowell Yavapai Nation. This year, our
respective organization has no firm commitment to submit applications for funding to any other tribal communities
in greater Arizona.
The timetable for implementation of the program or project. By the end of the first quarter we will recognize The
Fort McDowell Yavapai Nation Diabetes Resource Collection with signage in the Emily Center, where the full
collection is housed, and individual book plates on all of the resource materials that make up the collection. By the
end of the grant year we will complete a diabetes information packet specific to Native American populations. The
packet will serve as a baseline resource for patients who are members of tribal communities and will be updated
and customized as needed, to meet individual patient and family needs.
We hope you will join us in continuing to arm our patients and their parents with the most current and significant
medical resources. Patient education is critical to ensure children and families successfully manage their day to day
lives despite their diagnosis.
Thank you for your time. Should you have any questions regarding this proposal, please contact me.
Sincerely,
Steve Schnall
SVP, Chief Development Officer,
Phoenix Children’s Hospital Foundation
2929 East Camelback Road, Suite 122
Phoenix, Arizona 85016
602‐933‐2677
sschnall@phoenixchildrens.com

Fort McDowell Yavapai Nation Indian Community Diabetes Resource Collection Budget - 2017
Item Description Total Cost
Collection Naming (signage, bookplates, updates and maintenance to
collection) $ 50,000.00
Annual update to existing materials $ 167.00
Nurse research time to build out culturally competent information packet $ 1,116.00
Library attendant (cataloging, printing, collating) $ 717.00
Total Project Expenses $ 52,000.00

THE THE
EMILY EMILY
CENTER CENTER
AT PHOENIX CHILDREN’S HOSPITAL AT PHOENIX CHILDREN’S HOSPITAL
CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES. CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES.
Because Free Because Free
Information Information
Information About Child Information About Child
Offers Health And Offers Health And
Hope Illness Hope Illness
DONATED Fort McDowell DONATED Fort McDowell
BY: BY:
Yavapai Nation Yavapai Nation
Indian Community Indian Community
THE THE
EMILY EMILY
CENTER CENTER
AT PHOENIX CHILDREN’S HOSPITAL AT PHOENIX CHILDREN’S HOSPITAL
CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES. CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES.
Because Free Because Information Free
Information About Information Child Information About Child
Offers Health And Offers Health And
Hope Illness Hope Illness
DONATED Fort McDowell DONATED Fort McDowell
BY: BY:
Yavapai Nation Yavapai Nation
Indian Community Indian Community
THE THE
EMILY EMILY
CENTER CENTER
AT PHOENIX CHILDREN’S HOSPITAL AT PHOENIX CHILDREN’S HOSPITAL
CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES. CHILDREN’S HEALTH INFORMATION FOR ARIZONA’S FAMILIES.
Because Free Because Free
Information Information
Information About Child Information About Child
Offers Health And Offers Health And
Hope Illness Hope Illness
DONATED Fort McDowell DONATED Fort McDowell
BY: BY:
Yavapai Nation Yavapai Nation
Indian Community Indian Community