SARRC COVER LETTER AND GRANT APPLICATION-SRP-MIC-FINAL.PDF

Southwest

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Center

August 4, 2020

Mr. Gary Bohnee

Office of Congressional and Legislative Affairs
c/o 12% Gaming Grant Program

10005 East Osborn Road

Scottsdale, AZ 85256

Dear Mr. Bohnee,

On behalf of Southwest Autism Research & Resource Center (SARRC), we are pleased to submit this grant proposal to
the Salt River Pima-Maricopa Indian Community. SARRC is respectfully requesting $75,000, which will allow for the
continued delivery of critical telemedicine services across all programs, impacting over 350 children, teens, adults with
autism and their families. Funding will directly support telemedicine services through our JumpStart, Second Gear,
Employment Services, PEERS, Diagnostic Services, CommunityWorks, and Parent Training programs.

“When the COVID-19 pandemic caused intensive behavior services to abruptly end in March, we had many
challenges with our son due to the importance of routine and structure that SARRC had continually provided
on campus for nearly 4 years. The ability for our son to still see and communicate with the SARRC staff through
telemedicine allowed for all of us to feel safe and cared for during uncertain times. The behavior therapists
provided ongoing parental support as well worked through challenges and guided us in creating stability within
a therapeutic, home based environment.”- Arlo’s Mom

This is just one example of SARRC’s commitment to providing medically necessary telemedicine services to individuals
with autism and their families in need across Arizona. With the generous support of the Salt River Pima-Maricopa
Indian Community, SARRC can continue to deliver critical treatment through telemedicine to ensure that children,
teens, and adults with autism do not regress, and instead, continue to thrive during this crisis and beyond.

Established in 1997, SARRC is the state of Arizona’s leading and largest nonprofit organization serving the autism
community and holds a mission to advance research and provide a lifetime of support for individuals with autism and
their families. We are one of only eight nonprofits in the nation conducting its own independent research while
providing a lifespan of services for individuals with autism spectrum disorder (ASD).

Thank you for your consideration of this request. If you should need additional information, please feel free to contact
Lauren Smith, Corporate & Foundation Relations Manager, at 602-218-8213 or Ismith@autismcenter.org.

Sincerely,

te

Daniel Openden, Ph.D., BCBA-D
President & CEO

300 N. 18th Street Phone (602) 340-8717
Phoenix, AZ 85006 Fax (602) 340-8720
www.autismcenter.org

SALT RIVER PIMA-MARICOPA

INDIAN COMMUNITY
10005 E. Osborn Road, Scottsdale, Arizona 85256 / Phone 480-362-7520 / Fax 480-362-7593

12% Gaming Grant Program Application
Calendar Year 2021

About the Grant Program Application:

The Salt River Pima-Maricopa Indian Community 12% Gaming Grant Program (“Program”) application
will serve to provide a comprehensive review of the programming requests for Arizona cities, towns,
counties, non-municipal public service organizations, and non-profit organizations selected to apply for
grant funding. It is not the intent of the Program to award grants that would benefit individuals, be used
as sponsorships, be used for religious activities, primarily fund the indirect or administrative costs of a
program/organization, or be used for the direct benefit of the Salt River Pima Maricopa Indian
Community.

Date of Application: 8/4/2020
Organization Name: Southwest Autism Research & Resource Center
Organization/Municipal Government Mailing Address: 300 North 18" St. Phoenix, AZ 85006

Organization History:
(Provide a brief summary of the origins of the organizations and any notable milestones and/or
significant audit findings)

Established in 1997 by two mothers of children with autism and their pediatrician, Southwest
Autism Research & Resource Center (SARRC) is an internationally recognized nonprofit and
emulated model that conducts cutting-edge research, provides evidence-based practices,
disseminates effective training and builds inclusive communities for individuals with autism and
their families. Our mission is to advance research and provide a lifetime of support to individuals
with autism and their families. We are the state of Arizona’s largest nonprofit serving the autism
community, and an innovative leader in field of research and quality, evidenced-based services.

SARRC’s strategic approach is to promote and facilitate best practices for the long-term support
of individuals with ASD and their families through integrative research, educational outreach,
evidence-based modeled programs, and collaborative initiatives. While similar organizations
supporting individuals with ASD exist, we are only one of eight nationally recognized nonprofits
supporting the autism community through a lifespan of services while conducting independent
research in the field. Our approach to services and programs across the lifespan is a clinical
model grounded in Applied Behavior Analysis (ABA) with a focus on naturalistic behavioral
interventions in inclusive environments (e.g. at home, in school, on the job, and in the
community). Each of SARRC’s programs, classes, and trainings are guided by best-practice
models; the most currently available science; improving quality of life and producing meaningful
outcomes; and meeting the individualized needs of the children, adolescents, adults, and families
we serve.

In 2019, SARRC served 1,115 children, teens and adults with ASD through our clinical and
research programs; educated 8,545 parents, family members, typical peers and community
members; and provided training to 2,437 educational and medical professionals.

Organization Structure:
(Provide a list of current board members and key staff members)

Please see attached list of current board members and key staff members.

Do any conflicts of interest exist within the organization structure?
(I.e. family, professional or personal conflicts, SRPMIC representatives on board, etc.)

There are no conflicts of interest that exist within the organization structure.
Contact Person and Project Manager if different from Contact Person: Lauren Smith

Title: Corporate and Foundation Relations Manager
Address: 300 North 18" St. Phoenix, AZ 85006
Phone: 602-218-8213

Fax: 602-340-8720

Email Address: Ismith@autismcenter.org

Project Name: Telemedicine-Finding Hope in Crisis for Individuals with Autism and their Families

Provide a brief description of the project being submitted to the 12% SRPMIC Grant program. In the
description provide a summary of the relevant experience, administrative activity, and program
development related to the grant request.

Due to the COVID-19 pandemic, SARRC has made immediate and rapid modifications to our service
model, so we can continue to safely deliver treatment to our clients. It is imperative that our client’s
treatment can continue uninterrupted, so we have implemented telemedicine services across all
programs, using a HIPAA compliant platform, and/or have moved therapy sessions into the home,
allowing only one therapist to work with a single client and family to reduce the risk of exposure for
therapists and clients. Unfortunately, select SARRC programs reliant on a group-program format including
the Grandparents Support Group and our Community School, which is our inclusive preschool, have been
closed temporarily.

Amid program closures and service model changes, SARRC has seen a continued increase of requests for
services from individuals and families across Arizona. This increased demand for medically necessary
services will continue through 2020 and into 2021. To keep up with requests during the pandemic and
beyond, SARRC is requesting support from the Salt River Pima-Maricopa Indian Community to effectively
meet the emergent needs of those who need us most. While we have made immense shifts organization-
wide, our programs utilizing telemedicine services are essential services in Arizona. Through telemedicine,
SARRC has also been able to reach and impact more low-resource individuals and families in Arizona who
would otherwise not have access to critical autism services. Undoubtedly, there is a growing need and our
services and goals are well aligned with the Salt River Pima-Maricopa Indian Community’s focus on
supporting human services organizations that are providing impactful programs in response to COVID-19.

SARRC is requesting $75,000 where 100% of funding will support direct costs and allow SARRC to continue
delivering the necessary telemedicine services as well as actively enroll more individuals and their families
in need of support. Funding from the Salt River Pima-Maricopa Indian Community will directly support the
delivery of telemedicine services to serve more than 350 individuals with autism and their families
through the following programs:
e JumpStart is SARRC’s flagship program for children age 6 or younger at-risk for or have been
diagnosed with Autism Spectrum Disorder (ASD) and their families. Aligning with our mission to
advance research and provide a lifetime of support for individuals with autism and their families,

JumpStart is designed to give support and empowerment to families in crisis and to give children
a “jumpstart” on their evidence-based interventions in Applied Behavioral Analysis (ABA).

« Parent Training teaches families how to implement evidence-based strategies to support and
teach their child with ASD in their family life and natural routines. The Parent Training program
serves the health education needs of parents and while providing direct intervention to children
with ASD between the ages of 15 months to 7 years old.

¢ Employment Services assists adults ages 16-64 with ASD with gaining competitive employment in
the community. It focuses on supporting each individual’s employment goals and could include
any or all of the following wrap around services: vocational assessment, career exploration and
planning, internship opportunities, job development and placement services, resume and job
interview preparation, and short/long term on-the-job training and coaching.

e Diagnostic Services is the very first stop at the beginning of a person’s lifelong journey with
autism. While the Diagnostic Services Program primarily serves toddlers, young children, and
their families, SARRC can also provide services to teens and adults who are seeking answers and
support. Through direct interaction, developmental history interview, and evaluation, SARRC’s
team of experienced psychologists can reliably provide an autism diagnosis as early as 18 months
of age.

e CommunityWorks is an inclusive, community-based, pre-employment program that provides
important education and training for individuals with ASD ages 13-18 alongside their typically
developing peers.

e Second Gear is an 8-week program that provides information, consultation and coaching to
parents of children ages 4-10 who have a diagnosis of ASD.

e PEERS is 14-week intervention program that teaches social and friendship skills to adolescents
ages 12-18 with ASD.

Support granted by the Salt River Pima-Maricopa Indian Community will help SARRC continue to deliver
critical telemedicine services in our programs across the lifespan to ensure that children, teens, and adults
with autism do not regress, and instead, continue to thrive during this crisis and beyond.

What percentage of the grant request are Direct Costs of the programming and Indirect Costs,
respectively?

100% of the grant request will support direct costs including salaries of behavior therapists
implementing the medically necessary therapy and other program expenses including the
technology equipment needed for telemedicine services. Grant funding from the Salt River
Pima-Maricopa Indian Community will allow SARRC to continue delivering the necessary
therapy through telemedicine in our JumpStart, Second Gear, Employment Services, Diagnostic
Services, PEERS, CommunityWorks, and Parent Training programs as well as actively enroll
more individuals and their families in need of support.

Define the Project Category and/or relevant sub-category:
(i.e. Education, Public Safety, Transportation, Economic Development, Health Care, Social Services, or

Cultural and Environment)

The category for this grant request is healthcare, specifically focusing on direct patient care (clinical
intervention) and the delivery of telemedicine services.

Beginning Date of Project: January 1, 2021

End Date of Project: December 31, 2021

Geographic Area to be served:
This project will impact individuals with autism and their families in Maricopa County
and throughout Arizona.
** Attach Detailed Budget**- See attached budget below.
Amount of Total Project: $1,434,916 Amount of 12% Request: $75,000

(No Multi-Year Request will be accepted)

If the amount of funding received is less than the amount needed for the project, do you have other
funds to complete the project? (Please Explain):

SARRC has other funds to complete the project which include other unrestricted fundraising dollars
from our Annual Community Breakfast event as well as other grant funding. Additionally, SARRC has
sustainable, earned revenue sources across all programs that will help support the specific needs of
this project.

Grant funding from the Salt River Pima-Maricopa Indian Community will help ensure that critical
telemedicine services can continue in our programs across the lifespan, so individuals with autism and
their families in need throughout Arizona can receive medically necessary treatment.

If you receive SRPMIC 12 % funding, will it be spent (Check One):

| ¥ Monthly
J Quarterly
J Lump Sum

List any SRPMIC 12% funds you have received in the past. If the organization has received funding
through the SRPMIC 12% Gaming Grant Program for five consecutive years, they will be required to
submit a comprehensive report of grant funding toward the stated program objectives and mission of
the organization. In addition, you will be asked to provide a formal presentation to the 12% Gaming
Grant Committee prior to the awarding of any additional funding.

Southwest Autism Research & Resource Center has not received funds any 12% funds from the
Salt River Pima-Maricopa Indian Community.

List any other 12 % grant funds your organization may be seeking from other Tribal Governments in
2020-2021.

Southwest Autism Research & Resource Center is seeking 12% grants from another Tribal
Government in 2020-2021:

© Gila River Indian Community: $170,000 (Pending)

List any other funds you have received from the Salt River Pima-Maricopa Indian Community
(Enterprises Included) and identify the amount and the source:

Southwest Autism Research & Resource Center has not received any funds from the Salt River

Pima-Maricopa Indian Community.

Has your organization ever applied for and received any local, state or federal grants? If so, please
detail.

Southwest Autism Research & Resource Center has applied for state grants through Arizona
Developmental Disabilities Planning Council (ADDPC). Since 2012, SARRC has received $116,600 in funding
in support of programs and services from ADDPC.

Funding for project/programs may be based on available funding. As such, if funding were not
available for the full the amount of request how would you prioritize funding.

1. Funding from the Salt River Pima- Maricopa Indian Community would first support the delivery of

telemedicine services in our JumpStart Program.

2. Second, funding from the Salt River Pima-Maricopa Indian Community would support the delivery
of telemedicine services in our Parent Training Program.

3. Funding from the Salt River Pima-Maricopa Indian Community would then support telemedicine in
our Employment Services Program.

Which municipal governmental entity will serve as your pass through agency to accept 12% gaming
grant on your behalf?

Maricopa County will serve as SARRC’s pass through agency to accept the 12% gaming grant on our
behalf.

By execution of the 12% Gaming Contribution Grant Application the undersigned agrees that the
information contained in the Application is true to the best of the Applicants knowledge. The
Applicant shall notify the SRPMIC if any information in this Application changes.

ee | 8/4/2020

Signature for the Applicant Date

Daniel Openden, President & CEO
Name and Title

The Application shall be signed by the senior elected official of the local government, or in the case of
a non-profit entity, the Chief Executive Officer authorizes to commit the non-profit entity to apply for,
accept, and implement an award from the SRPMIC utilizing 12% Gaming Contributions.

Board Members

Officers:

Nicole Goodwin
Chair

Managing Shareholder
Greenberg Traurig LLP

Greg Wells

Vice Chair

Vice President

Human Resources &

Employee Development

Blue Cross Blue Shield of Arizona

Christine Wilkinson, Ph.D.
Vice Chair

Senior Vice President and
Secretary of the University
Arizona State University

Scott Wallace, CPA
Treasurer

Principal

Wallace Plese+Dreher

Monica Coury

Secretary

Vice President of Legislative and
Government Affairs

Centene Corporation

Gary Jaburg

Executive Committee Member
At-Large

Managing Partner

Jaburg & Wilk, P.C.

Daniel Openden, Ph.D., BCBA-D
ex-officio

President and CEO

SARRC

Members:

Neil Balter
Closet Guru
Organizers Direct

Greg Bernosky

Director of State Regulation and
Compliance

Arizona Public Service

Michael Bill
CEO
MJ Insurance

Chadwick Campbell
Senior Counsel
Thomas Title & Escrow

Pearl Chang Esau
Parent

Lev Gonick
Chief Information Officer
Arizona State University

Tom Harris
Executive Vice President & CFO
Arizona Diamondbacks

Jason Lattin
Regional Director, Investments
BMO Private Bank

Ken McElroy
CEO
MC Companies

Jamie Price
President & CEO
Advisor Group

Kim Shepard
President

Cigna HealthCare of Arizona, Inc.

Emeritus Members:

Denise D. Resnik
Director Emeritus
Founder & President/CEO
First Place® AZ;

SARRC co-founder

Howard Sobelman, Esq.
Director Emeritus
Partner

Snell & Wilmer L..L.P.

Southwest

ote ——

Center

Updated: January 2020

Southwest Autism Research & Resource Center
2020 Executive Leadership

Name Title

Daniel Openden, Ph.D., BCBA-D | President & CEO

Christopher J. Smith, Ph.D. Vice President and Research
Director

Larry D. Hillwig Chief Administrative Officer

Andrea Levy, CPA, CFE Chief Financial Officer

Maureen Jorden Chief Development Officer

Amy Kenzer, Ph.D., BCBA-D Vice President and Clinical
Services Director

Telemedicine: Finding Hope in Crisis
TY} Anion for Individuals with Autism
éfe SARRC owe | and their Families
2021
Revenue
Revenue & Support
SARRC Unrestricted Dollars 472,219
Individual Contributions
Corporate Contributions
Grants 440,000
Governmental 110,443
Program Service Fees 412,254
Interest, Dividend Income, & Market Change
Special Events
In-Kind Support
Total Revenue 1,434,916
Expenses
Salaries 908,580
Fringe Benefits 167,661
Contract Labor & Professional Services 6,431
Business & Travel 15,694
Occupancy & Communication 31,802
Postage Supplies & Printing 1,463
Marketing & Subscriptions 23,332
Staff Development 17,503
Program Supplies & Expenses 11,284
Other Operational Services 2,662
Cost of Goods Sold 5,833
In-Kind Expenses 2,000
Amortization & Depreciation 52,120
Administrative Overhead Allocation 188,551
Total Expenses 1,434,916
2021 BUDGET NET SURPLUS/(DEFICIT) -