2022_GRANT_APPLICATION_SW AUTISM RESEARCH.PDF
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Phone (602) 340-8717
Fax (602) 340-8720
www.autismcenter.org
300 N. 18th Street
Phoenix, AZ 85006
June 30, 2021
Mr. Gary Bohnee
Office of Congressional and Legislative Affairs
c/o 12% Gaming Grant Program
10005 East Osborn Road
Scottsdale, AZ 85256
Dear Mr. Bohnee,
On behalf of Southwest Autism Research & Resource Center (SARRC), we are pleased to submit this grant proposal to
the Salt River Pima-Maricopa Indian Community. SARRC is respectfully requesting $100,000, which will allow for the
continued delivery of critical clinical services across various programs, impacting over 350 children, teens, and adults
with autism and their families. Funding will directly support clinical services through our JumpStart, Second Gear,
Employment Services, PEERS, Diagnostic Services, CommunityWorks, and Parent Training programs.
“When we were working with the behavior therapist in JumpStart, our daughter started to have word
approximations, pointing, and eye contact again. We saw a night and day difference through participating in
SARRC’s clinical programs. SARRC is the only place that has actively helped us receive autism intervention
services for our daughter, and we are incredibly grateful.” -Emery’s Mom
This is just one example of SARRC’s commitment to providing medically necessary services to individuals with autism
and their families in need across Arizona. With the generous support of the Salt River Pima-Maricopa Indian
Community, SARRC can continue to deliver critical services to ensure positive outcomes, long-term success,
independence, and self-sufficiency for children, teens, and adults with autism and their families.
Established in 1997, SARRC is the state of Arizona’s leading and largest nonprofit organization serving the autism
community and holds a mission to advance research and provide a lifetime of support for individuals with autism and
their families. We are one of only eight nonprofits in the nation conducting its own independent research while
providing a lifespan of services for individuals with autism spectrum disorder (ASD).
Thank you for your consideration of this request. If you should need additional information, please feel free to contact
Lauren Smith, Corporate & Foundation Relations Manager, at 602-218-8213 or lsmith@autismcenter.org.
Sincerely,
Daniel Openden, Ph.D., BCBA-D
President & CEO
SALT RIVER PIMA-MARICOPA
INDIAN COMMUNITY
10005 E. Osborn Road, Scottsdale, Arizona 85256 / Phone 480-362-7520 / Fax 480-362-7593
12% Gaming Grant Program Application
Calendar Year 2022
About the Grant Program Application:
The Salt River Pima-Maricopa Indian Community 12% Gaming Grant Program (“Program”) application
will serve to provide a comprehensive review of the programming requests for Arizona cities, towns,
counties, non-municipal public service organizations, and non-profit organizations selected to apply for
grant funding. It is not the intent of the Program to award grants that would benefit individuals, be used
as sponsorships, be used for religious activities, primarily fund the indirect or administrative costs of a
program/organization or be used for the direct benefit of the Salt River Pima Maricopa Indian
Community.
Date of Application: 6/30/2021
Organization Name: Southwest Autism Research & Resource Center
Organization/Municipal Government Mailing Address: 300 North 18th St. Phoenix, AZ 85006
Organization History:
(Provide a brief summary of the origins of the organizations and any notable milestones and/or
significant audit findings)
Established in 1997 by two mothers of children with autism and their pediatrician, Southwest
Autism Research & Resource Center (SARRC) is an internationally recognized nonprofit and
emulated model that conducts cutting-edge research, provides evidence-based practices,
disseminates effective training, and builds inclusive communities for individuals with autism and
their families. Our mission is to advance research and provide a lifetime of support to individuals
with autism and their families. We are the state of Arizona’s largest nonprofit serving the autism
community, and an innovative leader in field of research and quality, evidenced-based services.
SARRC’s strategic approach is to promote and facilitate best practices for the long-term support
of individuals with ASD and their families through integrative research, educational outreach,
evidence-based modeled programs, and collaborative initiatives. While similar organizations
supporting individuals with ASD exist, we are only one of eight nationally recognized nonprofits
supporting the autism community through a lifespan of services while conducting independent
research in the field. Our approach to services and programs across the lifespan is a clinical
model grounded in Applied Behavior Analysis (ABA) with a focus on naturalistic behavioral
interventions in inclusive environments (e.g., at home, in school, on the job, and in the
community). Each of SARRC’s programs, classes, and trainings are guided by best-practice
models; the most currently available science; improving quality of life and producing meaningful
outcomes; and meeting the individualized needs of the children, adolescents, adults, and families
we serve.
In 2020, SARRC served 683 children, teens, and adults with ASD through our clinical and research
programs; educated 8,624 parents, family members, typical peers, and community members;
and provided training to 1,437 educational and medical professionals and screened 2,029 school-
age children for social challenges.
Organization Structure:
(Provide a list of current board members and key staff members)
Please see attached list of current board members and key staff members.
Do any conflicts of interest exist within the organization structure?
(I.e., family, professional or personal conflicts, SRPMIC representatives on board,
etc.)
There are no conflicts of interest that exist within the organization structure.
Contact Person and Project Manager if different from Contact Person: Lauren Smith
Title: Corporate and Foundation Relations Manager
Address: 300 North 18th St. Phoenix, AZ 85006
Phone: 602-218-8213
Fax: 602-340-8720
Email Address: lsmith@autismcenter.org
Project Name: SARRC’s Clinical Programs-Providing a Lifetime of Support for Individuals with Autism and
their Families
Provide a brief description of the project being submitted to the 12% SRPMIC Grant program. In the
description provide a summary of the relevant experience, administrative activity, and program
development related to the grant request.
Around the time SARRC was founded, the prevalence of autism in the United States was 1 in 500; today it
is 1 in 54 (Centers for Disease Control and Prevention, 2020). Autism is considered the fastest-growing
developmental disability in the U.S., according to Autism Society of America. It can cause significant social,
communication and behavioral challenges beginning in early childhood and typically lasting throughout a
person’s lifetime. Although the presentation of ASD varies significantly among individuals, it affects every
age group and occurs in all ethnic and socioeconomic groups.
Currently, SARRC provides the majority of services throughout Maricopa County, but there are still
individuals and families in Maricopa County and throughout the state do not have the resources and
availability to critical autism services. SARRC has identified a growing and urgent need to extend our
reach, eliminate barriers, and increase accessibility of services for individuals with autism and their
families and all communities throughout Arizona. Research and best practice have shown that early
intervention and continued support across the lifespan has significant impact on individuals with ASD and
their ability to improve social, communication and language skills over time, resulting in more positive
long-term outcomes.
SARRC is requesting $100,000 where 100% of funding will support program costs and allow SARRC to
continue delivering and increase access to medically necessary clinical services. These critical services will
expand throughout Arizona allowing SARRC to enroll even more individuals and their families in need of
support. Funding from the Salt River Pima-Maricopa Indian Community will directly support the delivery
of services to serve more than 350 individuals with autism and their families through the following
programs:
•
JumpStart is SARRC`s flagship program for children age 6 or younger at-risk for or have been
diagnosed with autism spectrum disorder (ASD) and their families. Aligning with our mission to
advance research and provide a lifetime of support for individuals with autism and their families,
JumpStart is designed to give support and empowerment to families in crisis and to give children
a “jumpstart” on their evidence-based interventions in Applied Behavioral Analysis (ABA).
•
Parent Training teaches families how to implement evidence-based strategies to support and
teach their child with ASD in their family life and natural routines. The Parent Training program
serves the health education needs of parents and while providing direct intervention to children
with ASD between the ages of 15 months to 7 years old.
•
Employment Services assists adults ages 16-64 with ASD with gaining competitive employment in
the community. It focuses on supporting each individual’s employment goals and could include
any or all the following wrap around services: vocational assessment, career exploration and
planning, internship opportunities, job development and placement services, resume and job
interview preparation, and short/long term on-the-job training and coaching.
•
Diagnostic Services is the very first stop at the beginning of a person’s lifelong journey with
autism. While the Diagnostic Services Program primarily serves toddlers, young children, and
their families, SARRC can also provide services to teens and adults who are seeking answers and
support. Through direct interaction, developmental history interview, and evaluation, SARRC’s
team of experienced psychologists can reliably provide an autism diagnosis as early as 18 months
of age.
•
CommunityWorks is an inclusive, community-based, pre-employment program that provides
important education and training for individuals with ASD ages 13-18 alongside their typically
developing peers.
•
Second Gear is an 8-week program that provides information, consultation and coaching to
parents of children ages 4-10 who have a diagnosis of ASD.
•
PEERS is 14-week intervention program that teaches social and friendship skills to adolescents
ages 12-18 with ASD.
Support granted by the Salt River Pima-Maricopa Indian Community will help SARRC continue to deliver
critical services in our programs across the lifespan to ensure positive outcomes, long-term success,
independence, and self-sufficiency for children, teens, and adults with autism.
What percentage of the grant request are Direct Costs of the programming and Indirect Costs,
respectively?
100% of the grant request will support direct costs including salaries of behavior therapists
implementing the medically necessary therapy and other critical program expenses for
effectively operating our programs including marketing, technology needs, staff training, and
other pertinent program expenses. Grant funding from the Salt River Pima-Maricopa Indian
Community will allow SARRC to increase access and continue delivering the necessary therapy
and intervention services in our JumpStart, Second Gear, Employment Services, Diagnostic
Services, PEERS, CommunityWorks, and Parent Training programs as well as actively enroll
more individuals and their families in need of support.
Define the Project Category and/or relevant sub-category:
(i.e., Education, Public Safety, Transportation, Economic Development, Health Care, Social Services,
or Cultural and Environment)
The category for this grant request is healthcare, specifically focusing on direct patient care (clinical
intervention) and the delivery of telemedicine services.
Beginning Date of Project: January 1, 2022
End Date of Project: December 31, 2022
Geographic Area to be served:
This project will impact individuals with autism and their families in Maricopa County
and throughout Arizona.
** Attach Detailed Budget**- See attached budget.
Amount of Total Project: $1,230,700
Amount of 12% Request: $100,000
(No Multi-Year Request will be accepted)
If the amount of funding received is less than the amount needed for the project, do you have other
funds to complete the project? (Please Explain):
SARRC has other funds to complete the project which include other unrestricted fundraising dollars
from our Annual Community Breakfast event as well as other grant funding. Additionally, SARRC has
sustainable, earned revenue sources across all programs that will help support the specific needs of
this project.
Grant funding from the Salt River Pima-Maricopa Indian Community will help ensure that critical
services can continue in our programs across the lifespan, so individuals with autism and their families
in need throughout Arizona can continue to receive medically necessary treatment.
If you receive SRPMIC 12 % funding, will it be spent (Check One):
✓ Monthly
Quarterly
Lump Sum
List any SRPMIC 12% funds you have received in the past. If the organization has received funding
through the SRPMIC 12% Gaming Grant Program for five consecutive years, they will be required to
submit a comprehensive report of grant funding toward the stated program objectives and mission of
the organization. In addition, you will be asked to provide a formal presentation to the 12% Gaming
Grant Committee prior to the awarding of any additional funding.
In 2020, Southwest Autism Research & Resource Center received $75,000 in generous 12%
grant funds to support the delivery of critical telemedicine services across various programs
for children, teens, and adults with autism and their families during the 2021 calendar year.
List any other 12 % grant funds your organization may be seeking from other Tribal Governments in
2020-2021.
Southwest Autism Research & Resource Center is seeking 12% grants from another Tribal
Government in 2020-2021:
•
Tohono O’odham Nation: $25,000 (Pending)
List any other funds you have received from the Salt River Pima-Maricopa Indian Community
(Enterprises Included) and identify the amount and the source:
In 2020, Southwest Autism Research & Resource Center received $75,000 in generous 12%
grant funds to support the delivery of critical telemedicine services across various programs
for children, teens, and adults with autism and their families during the 2021 calendar year.
Has your organization ever applied for and received any local, state or federal grants? If so, please
detail.
Southwest Autism Research & Resource Center has applied for state grants through Arizona
Developmental Disabilities Planning Council (ADDPC). Since 2012, SARRC has received $116,600 in funding
in support of programs and services from ADDPC.
In late 2020, the National Science Foundation (NSF) has awarded a grant valued at over $1 million to the
Institute for Learning Innovation (ILI), in partnership with SciTech Institute and the Southwest Autism
Research & Resource Center (SARRC) that will run through February 2023. The grant will be used to foster
engagement in science, technology, engineering, and mathematics (STEM) learning and social interaction
for individuals with autism spectrum disorder (ASD).
Funding for project/programs may be based on available funding. As such, if funding were not
available for the full the amount of request how would you prioritize funding.
1. Funding from the Salt River Pima- Maricopa Indian Community would first support the delivery of
services in our Employment Services Program.
2. Second, funding from the Salt River Pima-Maricopa Indian Community would support the delivery
of services in our Parent Training Program.
3. Funding from the Salt River Pima-Maricopa Indian Community would then support the delivery of
services in our JumpStart Program.
Which municipal governmental entity will serve as your pass-through agency to accept 12% gaming
grant on your behalf?
Maricopa County will serve as SARRC’s pass through agency to accept the 12% gaming grant on our
behalf.
By execution of the 12% Gaming Contribution Grant Application the undersigned agrees that the
information contained in the Application is true to the best of the Applicants knowledge. The
Applicant shall notify the SRPMIC if any information in this Application changes.
6/30/2021
Signature for the Applicant
Date
Daniel Openden, Ph.D., BCBA-D, President and CEO
Name and Title
The Application shall be signed by the senior elected official of the local government, or in the case of
a non-profit entity, the Chief Executive Officer authorizes to commit the non-profit entity to apply for,
accept, and implement an award from the SRPMIC utilizing 12% Gaming Contributions
Updated: January 2020
Officers:
Nicole Goodwin
Chair
Managing Shareholder
Greenberg Traurig, LLP
Greg Wells
Vice Chair
Vice President
Human Resources &
Employee Development
Blue Cross Blue Shield of
Arizona
Christine Wilkinson, Ph.D.
Vice Chair
Senior Vice President and
Secretary of the University
Arizona State University
Monica Coury
Secretary
Vice President, Legislative &
Government Affairs
Arizona Complete Health
Gary Jaburg
Executive Committee
Member at Large
Managing Partner
Jaburg & Wilk, P.C.
Scott Wallace, CPA
Treasurer
Principal
Wallace Plese+Dreher
Daniel Openden, Ph.D.,
BCBA-D
ex-officio
President and CEO
SARRC
Members:
Julie Alpert
Community Member
Neil Balter
Closet Guru
Gregory Bernosky
Director of State Regulation
and Compliance
Arizona Public Service
Michael Bill
CEO
MJ Insurance
Chadwick Campbell
Senior Counsel
Thomas Title & Escrow
Pearl Chang Esau
CEO
Shàn Strategies
Lev Gonick
Chief Information Officer
Arizona State University
Tom Harris
Executive Vice President and
Chief Financial Officer
AZ Diamondbacks
Stephanie King
Vice President
Charles Scwhab
Jason Lattin, CFA
Regional Director
Investments at BMO Private
Bank
Ken McElroy
CEO
MC Companies
Kim Shepard
President
Cigna-Arizona
Pearl Woodring
Former Buyer
Bloomingdales
Emeritus Members:
Denise D. Resnik
Founder & President/CEO
First Place® AZ;
SARRC co-founder
Howard Sobelman, Esq.
Partner
Snell & Wilmer L.L.
Board Members
Southwest Autism Research & Resource Center
Senior-Level Staff
Southwest Autism Research & Resource Center
Name
Title
Daniel Openden, Ph.D., BCBA-D
President & CEO
Christopher J. Smith, Ph.D.
Chief Science Officer
Andrea Levy, CPA, CFE
Chief Financial Officer
Maureen Jorden
Chief Development Officer
Amy Kenzer, Ph.D., BCBA-D
Chief Operations Officer
Revenue
Revenue & Support
SARRC Unrestricted Dollars
340,700
Individual Contributions
Corporate Contributions
Grants
250,000
Governmental
120,000
Program Service Fees
520,000
Interest, Dividend Income, & Market Change
Special Events
In-Kind Support
Total Revenue
1,230,700
Expenses
Salaries
800,000
Fringe Benefits
150,000
Contract Labor & Professional Services
6,000
Business & Travel
8,000
Occupancy & Communication
20,000
Postage Supplies & Printing
1,200
Marketing & Subscriptions
15,000
Staff Development
12,000
Program Supplies & Expenses
10,000
Other Operational Services
2,500
Cost of Goods Sold
8,000
In-Kind Expenses
3,000
Amortization & Depreciation
45,000
Administrative Overhead Allocation
150,000
Total Expenses
1,230,700
2021 BUDGET NET SURPLUS/(DEFICIT)
-
SARRC's Clinical Programs: Providing a Lifetime of
Support for Individuals with Autism
and their Families
2022