SOUTHWEST AUTISM RESEARCH & RESOURCE CENTER (SARRC) - TOHONO OODHAM 2017.PDF

Last updated: 05/08/2017
General information
Organization Southwest Autism Research & Resource Center (SARRC)
Contact First name Greg
Contact Last name Boone
Contact e-mail gboone@autismcenter.org
Contact phone number 602-218-8213
Address
Street 300 North 18th Street
City Phoenix
State AZ
ZIP Code 85006
From what tribe is the Tohono O’odham Nation
organization requesting the
grant?
Total grant amount request 25000
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Southwest Autism Research & Resource Center
Tohono O’odham Nation Proposal – JumpStart Online
Background & Perceived Need
Established in 1997 by two mothers of children with autism and the pediatrician, Southwest
Autism Research & Resource Center (SARRC) is the state’s leading and largest nonprofit serving
the autism community. Around the time SARRC was founded, the prevalence of an autism
diagnosis was 1 in 500; today it is 1 in 68. This growing number is especially worrisome in Arizona,
where the rate is 1 in 66 and considered one of the five states registering the nation’s highest
rates of autism. More children will be diagnosed with autism this year than with AIDS, diabetes
& cancer combined and autism is the fastest‐growing developmental disability in the U.S.
according to Autism Society of America.
Autism spectrum disorder (ASD) is a developmental disability that can cause significant social,
communication and behavioral challenges. Signs of ASD begin during early childhood and
typically last throughout a person’s life. Although the presentation of ASD varies significantly
among individuals, it affects every age group and occurs in all ethnic and socioeconomic groups.
For many, the most obvious signs and symptoms of ASD tend to emerge between 2 and 3 years
of age. While there is no known cause for ASD, research shows the potential for progress for
children with ASD is very good with early intervention.
Established as SARRC’s flagship program in 2002, JumpStart® is a parent empowerment program
designed for families with children under the age of 6, who are at‐risk or recently diagnosed with
Autism Spectrum Disorder (ASD). JumpStart consists of ten sessions (over six weeks) based on
the principles of Applied Behavior Analysis (ABA) that incorporate professionally led discussions
in a structured classroom environment, direct observation of 1:1 intervention sessions and in‐
vivo parent training. While many programs educate parents about autism, and therapists
commonly work directly with children in clinical settings or their homes, few programs in Arizona
both educate parents and train them on how to use the same behavioral techniques that
therapists employ in clinical settings.
As of June 2017, JumpStart will begin offering a set of eight online eLearning modules titled
“JumpStart Online”. This programmatic option will add efficiencies for families who cannot afford
to travel and/or find it difficult logistically to attend in‐person sessions. The guided observation
and direct coaching component of the JumpStart will still be scheduled on‐site at SARRC, and
once validated, the platform will enhance our JumpStart service model and increase the number
of families served over time.
Beneficiaries
JumpStart serves as a family’s introduction to autism, its lifelong journey and evidence‐based
practices that support the development of their newly diagnosed child. It consists of an
educational series for parents designed to support families in crisis and clinical interventions for
children, primarily focusing on improving communication and reducing problem behaviors across
natural settings. Research shows if the signs of ASD are caught early, treatments and therapies
can help children develop much faster and produce better outcomes than those receiving
interventions later in life.
Southwest Autism Research & Resource Center Proposal to Tohono O’odham Nation 1

Southwest Autism Research & Resource Center
Tohono O’odham Nation Proposal – JumpStart Online
Parents are provided with an overview of the characteristics of ASD, information on how to
access state‐funded services, direction for coordinating their child’s treatment with service
providers, and an educational overview on ASD, Applied Behavior Analysis (ABA) and other
related evidence‐based therapies. Parents receive training via topic‐based discussion, guided
observation of individual child sessions and live coaching/feedback.
Clinical Interventions emphasize the teaching of social, communication, and cognitive skills based
on the principles of ABA including Pivotal Response Treatment (PRT), Discrete Trial Training (DTT),
and Picture Exchange Communication System (PECS). JumpStart is also offered in Spanish,
specifically serving the needs of at least 12 monolingual Spanish‐speaking families each year.
Expected outcomes include having 78 children improve language and social skills, increase
communication responses, and overcome challenging behaviors, while 140 parents/caregivers
gain an understanding of ASD and ABA to better cope with their child’s disorder and enhance
their development.
Funding Request
SARRC is requesting $25,000 in grant funds from the Tohono O’odham Nation under the 2017
priority areas of Education & Health Care. Funding will support ongoing programmatic operation
of SARRC’s flagship program and advancement of its newly developed online, eLearning series in
order to serve more families, including those living in rural/remote areas of the state.
Other Funding Requests for This or Related Proposals with Status
No other tribal funding requests have been made for this particular program, however, we
actively seek other funding from corporate and foundation partners around the state. The
funding entity, status and amount of these proposals are listed as follows:
 Cardinals Charities (Secured) – $10,000
 Employees Community Fund of Boeing (Pending) – $5,000
 Fiesta Bowl Charities (Pending) – $35,390
 Opus Bank Foundation (Pending) – $5,000
 Phoenix Suns Charities (Pending) – $7,500
 Sundt Foundation (Secured) – $3,000
 Tohono O’odham Nation (Pending) – $25,000
 Valley of the Sun Active 20‐30 (Pending) – $2,500
 Valley of the Sun United Way (Pending) – $35,000
Funding from the Tohono O’odham Nation or other Arizona Tribes
Our Intensive Parent Training program has previously received funding from the Gila River Indian
Community in 2011 and 2014. In 2011, $125,000 was awarded and $150,000 in 2014 to support
our program teaching parents how to implement evidence‐based strategies that support and
teach their child with ASD within their family life and natural routines.
Southwest Autism Research & Resource Center Proposal to Tohono O’odham Nation 2

Southwest Autism Research & Resource Center
Tohono O’odham Nation Proposal – JumpStart Online
Contact and alternate contact information
Contact person: Greg Boone, Corporate & Foundation Relations Manager
Email address: gboone@autismcenter.org
Phone number: 602‐218‐8213
Mailing address: 300 N. 18th Street, Phoenix AZ 85006
Fax number: 602‐606‐9847
Alternate contact: Beatriz Orr
Email address: borr@autismcenter.org
Phone number: 602‐603‐3288
Mailing address: 300 N. 18th Street, Phoenix AZ 85006
Fax number: 602‐606‐9847
If the proposal is from a nonprofit organization, include the name of the city, town, or county
an agreement will be made with if funds are granted. A letter from the government entity
acknowledging its agreement to work with the nonprofit is not necessary for the initial
proposal. However, it is necessary for those nonprofits selected to receive grant funding.
SARRC is a 501 (c)(3) nonprofit and has submitted to the Maricopa County Board of Supervisors
for a resolution of support.
Southwest Autism Research & Resource Center Proposal to Tohono O’odham Nation 3

Southwest Autism Research & Resource Center
Tohono O’odham Nation Proposal – JumpStart Online
Budget and Budget Justification
Program Name: JumpStart
Item Justification/Details 2017 Tohono
Program O’odham
Budget Nation
REVENUES
Unrestricted SARRC unrestricted revenue supporting at
Dollars least 16 scholarships for low‐income families $12,000
to attend JumpStart
Grants Breakdown of solicited grants featured
above $128,390 $25,000
Program $750 enrollment fee; not covered by
Service Fees insurances; (72 regular JumpStart; 6 Online) $58,500
TOTAL REVENUE $198,890 $25,000
EXPENSES
Staff Program Staff comprised of (1) Bilingual Clinical
Salaries Manager (holds M.Ed., BCBA). Supervision is
managed by (1) Clinical Supervisor (holds
M.Ed., BCBA). Additional staff include a $119,881 $16,450
bilingual Intake Coordinator, (3) Parent
Trainers (one with a Master’s degree/BCBA
coursework and two with Bachelor’s degree
only) and (1) Bilingual JumpStart Clinician
(holds Bachelor’s).
Fringe Benefits Based on allocated staff dedicated to $26,316 $3,550
working in program
Occupancy Based on allocated staff dedicated to $5,339
working in program
Program Office supplies, printing and reproduction of
Expenses program materials; JumpStart Online’s $15,125
learning management system annual
registration fees
Amortization & Based on allocated program assets $8,226
Depreciation
Indirect Administrative overhead costs charged to
this grant at 10% $24,003 $5,000
TOTAL EXPENSES $198,890 $25,000
Southwest Autism Research & Resource Center Proposal to Tohono O’odham Nation 4

A parent empowerment program
HOW IT BEGINS WHAT IS JUMPSTART®?
JumpStart orientation occurs one week prior to the start of the program and serves JumpStart® is a 6-week (10
as the initial meeting for parents and children. Orientation consists of an informal session) program that provides
child-assessment and parent-assessment, a tour of the facility, and a more detailed
information, support and training
explanation of the program.
for parents of children up to age
6 and who have recently been
PROGRAM DETAILS
diagnosed with or are at risk for
One week after the completion of the orientation session, the JumpStart program begins.
Each lesson starts with a topic-based discussion for parents while clinicians work with autism spectrum disorder (ASD).
children in a classroom setting. Once the discussion ends, parents have the opportunity Children receive ABA-based
to watch their child’s individualized session through live video feed. An experienced intervention from highly trained
clinician provides a step-by-step explanation on the implementation of ABA-based SARRC clinicians in a classroom
interventions tailored to meet the individual needs of each child. Finally, each parent setting while parents participate in:
receives four, 75-minute parent coaching sessions where clinicians provide feedback and
coaching as parents implement the intervention procedures with their child. • Professionally-led discussions
• Guided observations
FOLLOW-UP
One week after the completion of the JumpStart program, a follow-up discussion is held • Coaching sessions
for parents only. The follow-up discussion provides strategies and ideas on how parents
can continue to implement techniques across a variety of environments.
PROGRAM AVAILABILITY
JumpStart sessions are ongoing and available on Tuesdays and Thursdays from
8:30 ­– 11 a.m. All sessions are held at SARRC’s Campus for Exceptional Children. The
total cost of the program is $750; a $175 non-refundable deposit is required to reserve a
space. The balance of $575 is due one week before orientation.
Financial assistance for families in need is available.
For more information or to We’re Social
register, please contact 602.340.8717
JumpStart register@autismcenter.org
www.autismcenter.org

A parent empowerment program
WHAT IS JUMPSTART®?
HOW IT BEGINS
JumpStart® is a 6-week (10
It all begins with a JumpStart Online orientation that occurs one week prior to the start session) program that provides
of the program and serves as the initial meeting. Orientation consists of an informal
information, support and training
child assessment and parent assessment as well as a more detailed explanation of the
for parents of children up to age
program and schedule. JumpStart Online offers families the flexibility to access portions
of the program remotely. Versus two weekly visits to SARRC’s campus, families are 6 and who have recently been
required to come only once a week. diagnosed with or are at risk for
autism spectrum disorder (ASD).
PROGRAM DETAILS
Children receive ABA-based
During the orientation session, in addition to completing assessments, the family receives intervention from highly trained
the log-in information they will be using to access online lessons during the program. SARRC clinicians in a classroom
Each week during the four weeks after the orientation session the family will complete setting while parents participate in:
two online lessons at their own time and an in-person coaching session. During each in-
vivo coaching session the family has an opportunity to ask questions about the material • Professionally-led discussions
covered during the online lessons, observe a clinician working 1:1 with their child while • Guided observations
explaining the strategies being implemented, and receive hands-on training practicing
the strategies observed while being coached. • Coaching sessions
PROGRAM AVAILABILITY
JumpStart online is scheduled during a 5 week period, based on the family’s and clinician’s
availability. The total cost of the program is $750; a $175 non-refundable deposit is
required to reserve a space. The balance of $575 is due one week before orientation.
Financial assistance for families in need is available.
For more information We’re Social
or to register, please 602.340.8717
contact JumpStart register@autismcenter.org
www.autismcenter.org